Zach's Story

Zach's Story

Zack's Story...

 

Zack was born healthy and happy. Around his 2nd birthday we got a diagnosis of an extremely rare disease called Mucopolysaccharidosis Type 2 (MPSll) or Hunters Syndrome. The fact that we caught it so young is a blessing because the sooner he can get onto treatment, the longer we could prolong his life.

 

There is no cure for the disease however the treatment slows its progression. The effects of MPSll are that his body cannot break down certain proteins which over time accumulate around his organs, bones, joints, etc. And if it advances far enough, could affect his brain and cause him to lose all ability to function. Most kids with this disease don't live longer than early to mid teens.  With treatment, Zach could live well into his 50's or even longer.

 

Because the disease is so rare, the treatment is incredibly expensive. Currently it would cost roughly R250 000.00 per month. We requested funding from the Medical Aid however were denied time and time again for varying reasons.  Eventually, in order to get interim treatment while we go through the Counsel of Medical Schemes (CMS) process (which could take up to 3 years to resolve if not more, which would impact his health tremendously we sought an interim order from the High Court to get his treatment paid by the medical aid pending the CMS ruling.

 

We won the case and began receiving his treatment. However less than 3 months later the medical aid stopped paying. We subsequently took them back to court to re-affirm the High Court order and have won twice, however the medical aid is using any technicality they can find to not pay.

 

To the extent that they have now summoned us to the Supreme Court of Appeal to try and get out of the High Court order.

 

For this reason, we are needing to raise a considerable amount of money for legal fees in order to continue this fight for Zach's life.

By Zach's Mom (Michaney de Wet) and Dad (Jacques de Wet) 

 

MBD wishes to support this cause and because little Zach is obsessed with dinosaurs and is his mom and dad's little dino, a percentage of all dino related products will be donated directly to Zach's fund.

Look out for the 'fight for Zach' logo badge and know you are not just spoiling your little one but helping another little one in his fight for his life.

Please also follow, share and donate to the fight for Zach fund - check them out on facebook. 

THANK YOU FOR YOUR SUPPORT!

 

 

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